Alice,

There's no easy answer to such a question. Philosophically, I believe all things balance and happen for a reason. Bear in mind, I am also dating someone with a potentially deadly seizure disorder. As for certain aspects of my relationship with him, I think that worrying is part of any relationship, but knowing that it could happen scares me, and it should. Despite his disorder, he is the happiest person I know, and in all honesty, we could all die at any moment. So why not live life to the fullest? The boy you like could die in five years or tomorrow, but so could you.

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What you are reasoning out with yourself sounds right to me, but I imagine it is truly hard to do. Help him take care of himself, but don't treat him like an invalid. He has already shown you how he intends to live his life.... Join him if you can handle the uncertainty and truly love him. Go if you can't handle the uncertainty whether you truly love him or not. You would be doing what is best for both of you if you can't deal with it.
Good luck.