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Nephrotic syndrome

Originally Published: March 01, 1996

          

 

Dear Alice,

I have a kidney disease which my doctors have been unable to diagnose. Where is a good place to look for some help? My doctors have told me it is nephrotic syndrome, but they don't know what is causing it. Can you help?

 

Alice has some information that your doctor may not have provided you. Nephrotic syndrome refers to a number of signs and symptoms resulting from damage to the filtering mechanisms (glomeruli) of the kidneys . This condition causes an extreme loss of protein from the bloodstream. This loss results in edema, or fluid retention. As far as its causes, nephrotic syndrome may result from diabetes mellitus, an inflammation of the kidney filters mentioned above, or from the accumulation of an abnormal protein in the organs and tissues. High blood pressure, reactions to poisons-particularly lead carbon tetrachloride and poison ivy, and bad reactions to drugs can also cause this illness. Symptoms include swelling and fluid collection in the face, legs, chest cavity and abdomen. Diarrhea, lethargy and anorexia can also occur. Treatments are usually directed at the underlying condition-among them may be a low-sodium diet and diuretic drugs to reduce swelling.

Alice reminds you and others who may be diagnosed with an illness about your rights as a patient to receive information for which you are paying. In other words, ask your care providers questions. If you don't understand their answers, or you want more information, request explanations in simple language that people without medical backgrounds can understand. Ask for other resources for information. For example, the National Kidney Foundation (800-622- 9010) provides information, brochures and referrals on various kidney disorders. Many public libraries have a wealth of information on health issues so that you can educate yourself while receiving treatment from professionals. And, since you already access the Internet for information, try searching for on-line resources using "kidney" as your key search term.

Alice

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